Self Pity
First off Thaddaeus is fine, more than fine...great! He's a blessing that I could have never imagined in having a boy. He's vivacious, strong and so happy.
I sit here looking at his photos from birth to now and I still cannot believe all that he has gone through already in his five months of life. I sit here crying, but why? Mostly for him. The fact that I am once again preparing for his surgery (two months away), setting dates and appointments. I feel so happy and blessed to be his Mother but yet I ache for his struggles, his differences.
I am sick of people saying, "wow it's amazing what they can do!"
Why couldn't you've said, "wow what a beautiful little boy!" when he was born?
Or when people point out that his face looks so wonderful... it makes me ache. I know it looks great, but I loved my son the way he was, I want him to be cherished at all times not just when he looks "socially acceptable."
I am afraid that we aren't doing enough. I read other cleft blogs and I wonder if we should have some of things they are using for their children to better the scarring and healing process? When I accidentally spilled his "scar guard" and brought him in for more two weeks later, the surgeon said "Well I think we can just end it, it looks good."
"Wait! Didn't you say use for three months?" I didn't really get a response, but more like a runaround answer.
When I called last week to find out what our next steps are they said palette surgery anytime from September -December. Okay... should we come in? "Yes, about week before surgery."
I want to know if we should start solids (we kind of had) and whether or not his scare looks normal... I think it looks big and red...like a solid stripe from his nose to his lip... is that what it will look like? Why wasn't two little lines made? Is his nostril suppose to look that closed compared to his natural formed one?
I know what I need to do and it's go in and demand answers. I hate when they say..."Oh he'll most likely go home that afternoon after surgery!"
Kiss off he spent two days last time and there is no way I am taking a baby home right after surgery so I can play nurse and pretend to know what I am looking for or at, he'll stay until he can respond and eat... thank you very much.
Ugh this post turned from somber and pitiful to downright mad and disgruntle. No, my blog isn't on it's rag it just has an emotional author that is having a hard time really grasping onto the life that has been given to me.

































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